Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.
We support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.
Our helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.
Talk and Support – For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.
To find out more about the telephone, online, and face-to-face services offered by Retina UK please visit our website.
- Age Range
Who to contact
The role of this directory is to provide information. It is your personal responsibility to make sure that organisations are appropriate and safe for you, your child or young person before they attend. Please read our guide to staying safe - things to consider